RareConnect Satellite Meeting during EURORDIS Membership Meeting #ECRD2016

During the EURORDIS Membership meeting 2016 in Edinburgh, Scotland the RareConnect team presented progress on the platform along with highlighting how rare disease patient groups can take part in the project.

Watch videos from the workshop here on Facebook.

RareConnect UpdateRobert Pleticha & Marta Campabadal, RareConnect online community managers

Next, Denis Costello presented the RareConnect Discussion Groups

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Finally, Mike Brudno from the Centre for Computational Medicine Hospital for Sick Children & University of Toronto presented PhenomeCentral: an integrated portal for sharing patient phenotype and genotype data for rare genetic disorders

Mike Sick Kids EMM 2016 slides

mike

 

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