There are around 985 million new Facebook posts and 400 million new Tweets made every day.
How is your disease and message going to stand out?
Do you need an easy activity to unite your followers and members to all send out the same message on social media at the exact same time and date?
Consider starting a Thunderclap on their website.
WHAT IS THUNDERCLAP?
Thunderclap is the first crowd-speaking platform that helps people be heard by saying something together.
HOW DOES IT WORK?
If enough people support it, Thunderclap will send out a timed Facebook Post or Tweet from all your supporters, creating a wave of attention.
WHY THUNDERCLAP AND RARE DISEASES?
-Way to unite your community and show leadership by your association by asking everyone to come together on social media while increasing the total number of people your posts reach.
-Free to use, short time needed to set up a campaign.
-Call attention to an important issue, disease awareness campaign, share fact about your disease, new video or stories available, invite people to an event, use for fundraiser, etc.
-People lend their social media support to causes they believe in like rare diseases, you just need to ask them.
SUGGESTIONS FOR BEST USE
-Reach out to other patient groups for help when designing a new Thunderclap. Get others involved early so they feel ownership as well.
-Send a personalized email to your members after the campaign goes live asking them to join immediately so the campaign is supported in the early stages.
-Keep your post focused on one message and one link. What is the most important page or information to share?
-Set your goal of supporters low to ensure your message is sent. If more then the minimum signs up, even better.
-As a campaign organizer, you can find out the contact information of people that supported your campaign.
WHERE CAN I LOOK FOR EXAMPLES?
Rare Disease Day 2014 Social Media Awareness campaign
AKU Society for launch of crowdfunding campaign
— AKU Society (@findAKUre) September 1, 2013
Rett Syndrome Ontario for Rett syndrome awareness month
— Rare Diseases Europe (@eurordis) October 26, 2013
Tay Sachs and Sandoff disease for Rare Disease Day 2013
Don’t forget to tell us when you do a Thunderclap, we’d like to help spread your message: firstname.lastname@example.org