Use Followerwonk to find other rare disease patients

We would like to introduce you a new tool we’ve started using on RareConnect. It’s called Followerwonk. http://followerwonk.com/

Followerwonk offers different features and some of them quite advanced, like compare your Twitter followers, analyze their influence, see the most active hours of your followers, where they come from, etc.

The feature we found more interesting is the “Search Twitter Bios” one.

FollowerwonkWe use it all the time to search patients or families who would be interested in joining one of our online communities.

It’s very easy to use. You don’t need to sign in to use this Bio Search, but if you do you can get a deeper analysis of your Twitter account.
Followerwonk
Steps:
1. Go to the 1st tab Search Twitter Bios: https://followerwonk.com/bio
2. Just write down the name of the disease you want to search and click “Do it”.

Followerwonk

Then, you’ll see a results list ordered by relevance where the word you searched appears in their bio.

What else information you can see on this list?

For example, you can see if you are following this account or if they follow you.
Followerwonk
You can also sort all the results by number of tweets, number of followers, grade of influence, etc.

Followerwonk

We believe this tools is very useful for small communities of rare disease patients or for ultra rare diseases where exist only a few cases all over the world. Use it as a complementary tool to find more patients who don’t know you or your patient organisation.

Do you want more information about Followerwonk on how to use it? Email us and we’ll be glad to show you.
marta.campabadal@eurordis.org
robert.pleticha@eurordis.org

Other tools/features we recommend:
Hootsuite
Google+
Thunderclap
Geotargeted posts on Facebook

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