We would like to introduce you a new tool we’ve started using on RareConnect. It’s called Followerwonk. http://followerwonk.com/
Followerwonk offers different features and some of them quite advanced, like compare your Twitter followers, analyze their influence, see the most active hours of your followers, where they come from, etc.
The feature we found more interesting is the “Search Twitter Bios” one.
We use it all the time to search patients or families who would be interested in joining one of our online communities.
It’s very easy to use. You don’t need to sign in to use this Bio Search, but if you do you can get a deeper analysis of your Twitter account.
1. Go to the 1st tab Search Twitter Bios: https://followerwonk.com/bio
2. Just write down the name of the disease you want to search and click “Do it”.
Then, you’ll see a results list ordered by relevance where the word you searched appears in their bio.
What else information you can see on this list?
We believe this tools is very useful for small communities of rare disease patients or for ultra rare diseases where exist only a few cases all over the world. Use it as a complementary tool to find more patients who don’t know you or your patient organisation.