Tag Archives: webinar


Rare Diseases and Gene Therapy Webinar

Gene therapy and rare diseases webinar with Dr. Kshitiz Singh from the Precision Medicine lab at Georgia Tech in Atlanta. Webinar agenda: · Key terms in Genetics & Gene Therapy ·…


RareConnect webinar: How to start a Twitter account for your rare disease

  Download the slides Descarga la presentación en ESPAÑOL. SPEAKERS: Rob Pleticha (@robpleticha), Online Community Manager RareConnect & Emma Rooney (@blumencasey), Gaucher disease patient advocate Why start a Twitter account? How can I…