Tag Archives: twitter

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RareConnect webinar: How to start a Twitter account for your rare disease

  Download the slides Descarga la presentación en ESPAÑOL. SPEAKERS: Rob Pleticha (@robpleticha), Online Community Manager RareConnect & Emma Rooney (@blumencasey), Gaucher disease patient advocate Why start a Twitter account? How can I…

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Use Followerwonk to find other rare disease patients

We would like to introduce you a new tool we’ve started using on RareConnect. It’s called Followerwonk. http://followerwonk.com/ Followerwonk offers different features and some of them quite advanced, like compare…

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Using Thunderclap to unite your crowd on social media

by Robert Pleticha There are around 985 million new Facebook posts and 400 million new Tweets made every day. How is your disease and message going to stand out? Do…

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#RareDisease Patient Advocates: Follow These 25 Twitter Accounts

by Robert Pleticha We collected our favourite 25 Twitter accounts that any #RareDisease patient advocate on Twitter should be following:   RareConnect Here Connecting rare disease patients globally. RareConnect is…

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Twitter Tips: Useful strategies when writing Tweets

by Robert Pleticha Burston-Marstellar is a PR firm that has archived all of their tips for using Twitter effectively in to one place. We hope you find it as useful…

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Creating a landing page on social media sites

by Robert Pleticha During some of our workshops, people have asked, “What is the minimum I can do on social media?” The answer is to at least create an account…