Tag Archives: rarediseaseday

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21 ways to participate in International Rare Disease Day 2018

Patients as proactive actors in research Rare Disease Day 2018 (28 February) focuses on this year’s theme – research. This year’s video pays tribute to the role patients play in…


RareConnect webinar: How to start an awareness day for your rare disease

RareConnect has been collecting the dates of different global and national awareness days for different rare diseases in this blog post.  Many patient groups ask us how to start an awareness…