List of #RareDisease Hashtags

twitter hashtags image

Hashtags make it easy to follow a conversation and unite a community around a particular rare disease, or just the #RareDisease topic in general. Here is a list of just some of the many rare disease hashtags that exist. Don’t see yours in the list? Add it in the comments section here. Save a search for your disease hashtags when in Twitter so that they automatically appear each time you click in the search box.

#AdrenalInsufficiency
#aHUS (atypical HUS)
#ALS
#AorticDissection
#Amyloidosis
#Arachnoiditis
#Ataxia
#AtypuicalHUS
#BattenDisease
#Behcets
#BethlemMyopathy
#CerebralCavernousMalformation
#Chiari
#Chromosome18
#CongenitalHyperinsulinism
#CowdensSyndrome
#CMD (congenital muscular dystrophy)
#CRPS (Complex Regional Pain Syndrome)
#Cryoglobulinemia
#CryoGroup
#cureEB
#Cushings
#Cystinosis
#CVID
#DercumsDisease
#Dermatomyositis
#Dravet
#EhlersDanlos
#EmanuelSyndrome
#EpidermolysisBullosa
#FamilialMediterraneanFever
#FMD
#FOXP1
#FMDaware
#GaucherDisease
#GPFAD2013
#HEAwareness (Hashimoto’s encephalopathy)
#HereditarySpasticParaplegia
#HLRCC
#HSP
#HereditarySpasticParaparesis
#HunterSyndrome
#Huntingtonsdisease
#hypophosphatasia
#ichthyosis
#IPF (Idiopathic Pulmonary Fibrosis)
#KallmannSyndrome
#KleefstraSyndrome
#Klinefelters
#Lipodystrophy
#Marfan
#Mastocytosis
#MERS (Middle East Respiratory Syndrome)
#Mesothelioma
#MoebiusSyndrome
#Moebiusawareness
#Moyamoya
#MPSAwareness
#MPSII
#MPSIII (Sanfilippo syndrome)
#MultipleEndocrineNeoplasia
#MyastheniaGravis
#MyalgicE
#Myositis
#NMO (neuromyelitis optica)
#Neurofibromatosis
#NeuromyelitisOptica
#Paraganglioma
#ParryRomberg
#PierreRobin
#PittHopkins
#PKU
#Phenylketonuria
#Phenylcetonurie
#Pemphigoid
#Pemphigus
#PeriodicFevers
#PFAPA (Periodic Fever, Aphthous Stomatitis, Pharyngitis, Cervical Adenitis)
#Porphyria
#Progeria
#PSACH (Pseudoachondroplasia)
#PTEN
#PulmonaryFibrosis
#RareDisease
#RareDiseaseDay
#RettSyndrome
#Sarcoidosis
#Scleroderma
#SCADheart
#StrumpellLorrainDisease
#Syringomyelia
#SystemicSclerosis
#TrigeminalNeuralgia
#UllrichMyopathy
#Undiagnosed
#Vasculitis
#VonHippelLindau
#WilsonsDisease
#WilliamsSyndrome

Looking to raise awareness about your rare disease and connect with others around the world? Start a Discussion about your disease on RareConnect and we will promote your post on social media.

Use Twitter? Don’t forget to Follow us for inspiring stories of people living with a rare disease


 

Share on FacebookTweet about this on TwitterShare on Google+Share on LinkedInEmail this to someone