RareConnect workshop during the EURORDIS Membership Meeting 2014

The RareConnect team was pleased to welcome over 60 patient group representatives to its workshop on Online Communities during the 2014 EURORDIS Membership Meeting in Berlin. To view the presentations, please click on the links below.

Special thanks to Dr. A.E.Tozzi for participating on our Workshop.

1. RareConnect Update – Rob Pleticha, RareConnect Manager


Robert Pleticha


2. Updates to RareConnect during 2014 – Denis Costello, RareConnect Project Leader

0003Denis Costello

3. The Value of Online Communities РDr. A.E. Tozzi, Pediatrician, epidemiologist, and vaccine expert. Engaged in pediatric research, patient empowerment, and telemedicine


Dr. A.E. Tozzi


4. Our Experience: Surveys – Rob Pleticha, RareConnect Manager


RareConnect’s poster presented at the ECRD 2014
RareConnect and it’s online collaborative patient-centered & patient-driven research approach




Questions? Email us at team@rareconnect.org

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