geolocation

How to get more impact from your Facebook publications: geolocation

One of the most interesting functionalities Facebook has to offer is the possibility to geolocalise your posts. As you already know, RareConnect is available in 8 languages. Analysing our Facebook…

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RareConnect webinar: How to start a Twitter account for your rare disease

  Download the slides Descarga la presentación en ESPAÑOL. SPEAKERS: Rob Pleticha (@robpleticha), Online Community Manager RareConnect & Emma Rooney (@blumencasey), Gaucher disease patient advocate Why start a Twitter account? How can I…

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RareConnect Satellite Meeting during EURORDIS Membership Meeting #ECRD2016

During the EURORDIS Membership meeting 2016 in Edinburgh, Scotland the RareConnect team presented progress on the platform along with highlighting how rare disease patient groups can take part in the…

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RareConnect webinar: How to start an awareness day for your rare disease

RareConnect has been collecting the dates of different global and national awareness days for different rare diseases in this blog post.  Many patient groups ask us how to start an awareness…

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How to create a profile for a rare disease community on RareConnect

See our list of current communities on RareConnect here: https://www.rareconnect.org/en/communities We work in partnership with rare disease patient associations to create those communities and offer community management support, human translation and…

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List of #RareDisease Hashtags

Hashtags make it easy to follow a conversation and unite a community around a particular rare disease, or just the #RareDisease topic in general. Here is a list of just…

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Our experience with a crowdfunding campaign

Earlier this year, the RareConnect team actively participated in a crowdfunding campaign led by the Spanish Association of Ectodermal Dysplasia and a father with two children affected by this rare…

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Rare Disease Awareness Days

This list of awareness days for different rare diseases has been gathered from EURORDIS members and RareConnect followers over the past few months. If we missed your date, please go…

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Crowdfunding and rare diseases: an expanding phenomenon

by Robert Pleticha We did a webinar about crowdfunding last year, and I attended the first ever UK Crowdfunding Day last November. Ever since, I’ve been thinking about how more rare disease patient groups…

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RareConnect workshop during the EURORDIS Membership Meeting 2014

The RareConnect team was pleased to welcome over 60 patient group representatives to its workshop on Online Communities during the 2014 EURORDIS Membership Meeting in Berlin. To view the presentations, please click…