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We’d love to hear from you!
Email: team@rareconnect.org
Follow us on social media:
https://www.facebook.com/rareconnect/
https://twitter.com/RareConnect
https://www.instagram.com/rareconnect/
i am from greece. my 4 years old son has a rare deseasa called MASTOCYTOSIS. I would contact with other patiets or their families who are faced the same desease
Dear Fei,
Join the international online community for Mastocytosis patients.
https://www.rareconnect.org/en/community/mastocytosis-and-mast-cell-activation-disorders
The community is available in 5 languages and it’s modertated by patient representatives.
Once you join you can introduce yourself on the forum: https://www.rareconnect.org/en/community/mastocytosis-and-mast-cell-activation-disorders/forum
Only registered members wan see fully the members section. I’m sure you’ll find another patient from Greece on this community.
https://www.rareconnect.org/en/community/mastocytosis-and-mast-cell-activation-disorders/members
I’ve found a couple of websites I think will be useful for you:
http://www.mastocytosis.eu/countries/greece.php
http://ecnm.net/homepage/index.php/greece
You can email me at marta . campabadal @ eurordis . org for further questions.
Best,
Marta