Robert Pleticha Online Patient Communities Manager, EURORDIS
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Marta Campabadal Online Patient Communities Coordinator, EURORDIS firstname.lastname@example.org
i am from greece. my 4 years old son has a rare deseasa called MASTOCYTOSIS. I would contact with other patiets or their families who are faced the same desease
Dear Fei, Join the international online community for Mastocytosis patients. https://www.rareconnect.org/en/community/mastocytosis-and-mast-cell-activation-disorders
The community is available in 5 languages and it’s modertated by patient representatives.
Once you join you can introduce yourself on the forum: https://www.rareconnect.org/en/community/mastocytosis-and-mast-cell-activation-disorders/forum Only registered members wan see fully the members section. I’m sure you’ll find another patient from Greece on this community. https://www.rareconnect.org/en/community/mastocytosis-and-mast-cell-activation-disorders/members
I’ve found a couple of websites I think will be useful for you: http://www.mastocytosis.eu/countries/greece.php http://ecnm.net/homepage/index.php/greece
You can email me at marta . campabadal @ eurordis . org for further questions.
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