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21 ways to participate in International Rare Disease Day 2018

Patients as proactive actors in research Rare Disease Day 2018 (28 February) focuses on this year’s theme – research. This year’s video pays tribute to the role patients play in…

RareConnect summary 2016 EMM_final

RareConnect Satellite Meeting during EURORDIS Membership Meeting #ECRD2016

During the EURORDIS Membership meeting 2016 in Edinburgh, Scotland the RareConnect team presented progress on the platform along with highlighting how rare disease patient groups can take part in the…