Category Archives: Uncategorized


21 ways to participate in International Rare Disease Day 2017

Caring for people living with a rare disease has many facets. Some patients have access to medicines while others have no treatment available. Some patients are fairly independent while others…

RareConnect summary 2016 EMM_final

RareConnect Satellite Meeting during EURORDIS Membership Meeting #ECRD2016

During the EURORDIS Membership meeting 2016 in Edinburgh, Scotland the RareConnect team presented progress on the platform along with highlighting how rare disease patient groups can take part in the…