Category Archives: Promoting RareConnect

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Get the latest RareConnect updates

Once a month we send updates with the latest RareConnect news in English and Spanish. Do you want to start receiving them? Fill in the form below! We’d love to…

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Redes sociales para pacientes e investigadores

El pasado mes de Junio 2017 nos invitaron a hablar de redes sociales y RareConnect en la 1a Escuela de Verano de organizada conjuntamente por EURORDIS y FEDER. El enorme…

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How to create a profile for a rare disease community on RareConnect

See our list of current communities on RareConnect here: https://www.rareconnect.org/en/communities We work in partnership with rare disease patient associations to create those communities and offer community management support, human translation and…

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RareConnect workshop during the EURORDIS Membership Meeting 2014

The RareConnect team was pleased to welcome over 60 patient group representatives to its workshop on Online Communities during the 2014 EURORDIS Membership Meeting in Berlin. To view the presentations, please click…

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Promoting your RareConnect community

Why promote your community?   The RareConnect project is a partnership. The community needs your expertise and encouragement to thrive as an international space for people affected by a rare…

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RareConnect Badges

How to promote your Community Continual and consistent promotion of your RareConnect community is critical to member participation. When promoting this platform highlight the benefits of your community like human translation…