RareConnect webinar: How to start an awareness day for your rare disease

RareConnect has been collecting the dates of different global and national awareness days for different rare diseases in this blog post.  Many patient groups ask us how to start an awareness day for their individual disease. This webinar discusses best practices in starting an awareness day for your community. In this webinar, patient advocates share their experiences along with a highlight of what works to bring together your community for a disease awareness day.

Speakers:

Robert Pleticha

 

Robert Pleticha, RareConnect community manager

Download Rob’s slides on Starting an Awareness Day for your rare disease

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Timo Söderlund, Aortic Dissection Organization Scandinavia, Sweden

Download Timo’s slides on Aortic Dissection Awareness Day

 

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nicola

 

Nicola Whitehill, Raynauds Scleroderma Global Patient Advocate, UK

Download Nicola’s slides on World Scleroderma Awareness Day

 

 

Have a question on the webinar? Add it in the comments below…

 

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